Authors :
Vincent Macmbinji
Volume/Issue :
Volume 9 - 2024, Issue 3 - March
Google Scholar :
https://tinyurl.com/4fefxwuv
Scribd :
https://tinyurl.com/2cfbzwzd
DOI :
https://doi.org/10.38124/ijisrt/IJISRT24MAR285
Note : A published paper may take 4-5 working days from the publication date to appear in PlumX Metrics, Semantic Scholar, and ResearchGate.
Abstract :
The primary goal of this study's contents is to
systematically review earlier studies on the quality of life
in parents of autistic children and provide a significant
analysis of the ways in which societal themes and facets
influence the current state of affairs. Using the four
dimensions of the quality of life—the physical,
psychological, social, and environmental domains—as a
guide, this analysis has attempted to address significant
and noteworthy aspects as indicated by World Health
Organization (2012).In the present study, I intend to
explore the parents’ opinions regarding their quality of
life towards diagnosis of their children with autism. This
systematic review, which adhered to PRISMA principles,
sought to find and evaluate pertinent studies on parents
of autistic children's quality of life (QoL). Twenty-five
studies were found to be potentially relevant after a
preliminary search. 12 studies were eliminated after the
preset inclusion and exclusion criteria were applied
because they did not meet methodological requirements,
did not focus on the same demographic, or did not fall
within the relevant timeframe. As a result, six papers
were left in the final pool for additional synthesis and
analysis. According to this review, mothers reported
lower levels of physical, psychological, and environmental
comfort than fathers. In the psychological and physical
dimensions of QOL level, mothers and fathers differ
significantly from one another. The majority of parents
expressed dissatisfaction over their family life and
relationships being negatively impacted by their inability
to obtain funds, specialist intervention programs, and
prompt diagnosis. Nonetheless, parents concurrently
expressed favourable views of transformation resulting
from diagnosis and successful intervention. Families with
children diagnosed with autism spectrum disorder may
face additional stressors due to delays and challenges in
diagnosis and service availability. Families' social and
professional lives, as well as their connections with friends
and relatives, are all impacted by raising a child with
autism. The study suggests that raising awareness about
the quality of life for families of children with autism is
necessary. To protect the most vulnerable families, the
state should enact laws and policies pertaining to
disabilities and educate the public about the various kinds
of disabilities. These initial results add to our
understanding of the perspectives of parents of disabled
children on their child's quality of life.
Keywords :
Autism; Diagnosis; Services; Parent; Qualitative.
The primary goal of this study's contents is to
systematically review earlier studies on the quality of life
in parents of autistic children and provide a significant
analysis of the ways in which societal themes and facets
influence the current state of affairs. Using the four
dimensions of the quality of life—the physical,
psychological, social, and environmental domains—as a
guide, this analysis has attempted to address significant
and noteworthy aspects as indicated by World Health
Organization (2012).In the present study, I intend to
explore the parents’ opinions regarding their quality of
life towards diagnosis of their children with autism. This
systematic review, which adhered to PRISMA principles,
sought to find and evaluate pertinent studies on parents
of autistic children's quality of life (QoL). Twenty-five
studies were found to be potentially relevant after a
preliminary search. 12 studies were eliminated after the
preset inclusion and exclusion criteria were applied
because they did not meet methodological requirements,
did not focus on the same demographic, or did not fall
within the relevant timeframe. As a result, six papers
were left in the final pool for additional synthesis and
analysis. According to this review, mothers reported
lower levels of physical, psychological, and environmental
comfort than fathers. In the psychological and physical
dimensions of QOL level, mothers and fathers differ
significantly from one another. The majority of parents
expressed dissatisfaction over their family life and
relationships being negatively impacted by their inability
to obtain funds, specialist intervention programs, and
prompt diagnosis. Nonetheless, parents concurrently
expressed favourable views of transformation resulting
from diagnosis and successful intervention. Families with
children diagnosed with autism spectrum disorder may
face additional stressors due to delays and challenges in
diagnosis and service availability. Families' social and
professional lives, as well as their connections with friends
and relatives, are all impacted by raising a child with
autism. The study suggests that raising awareness about
the quality of life for families of children with autism is
necessary. To protect the most vulnerable families, the
state should enact laws and policies pertaining to
disabilities and educate the public about the various kinds
of disabilities. These initial results add to our
understanding of the perspectives of parents of disabled
children on their child's quality of life.
Keywords :
Autism; Diagnosis; Services; Parent; Qualitative.
