Awareness Regarding Screening Programs in General Population to Improve Health Indicators: Genetic Counselors as Facilitators


Authors : Gulfiza Qadir; Sreelatha Komandur; Qurratulain Hasan

Volume/Issue : Volume 9 - 2024, Issue 7 - July


Google Scholar : https://tinyurl.com/34mbjzwh

Scribd : https://tinyurl.com/27ksp6ya

DOI : https://doi.org/10.38124/ijisrt/IJISRT24JUL1888

Note : A published paper may take 4-5 working days from the publication date to appear in PlumX Metrics, Semantic Scholar, and ResearchGate.


Abstract : Public health screening programs are crucial for early disease detection, but limited awareness hinders their effectiveness in India, regardless of literacy. This study assessed awareness levels for key programs among 294 literate and illiterate individuals via an online survey. Results showed high awareness for antenatal care (96%). Newborn screening (NBS) and thalassemia screening awareness were higher in females, particularly regarding thalassemia's hereditary nature (73% vs 61% and 73% vs 57%). Cervical cancer awareness increased with education (83% for graduates). Interestingly, even those with no education displayed some awareness of breast cancer screening. Prostate cancer awareness was similar across genders, with limited knowledge even among highly educated individuals (66% for Ph.Ds). These findings highlight a critical gap in public health education. Genetic counselors can bridge this gap by implementing targeted campaigns, partnering with schools and communities, and collaborating with healthcare professionals. Empowering individuals with knowledge is essential for improved population health outcomes in India.

Keywords : Early Disease Detection, Genetic Counseling, Health Literacy, Population Health Outcomes, Public Health Awareness, Screening Programs in India.

References :

  1. Kasthuri A. Challenges to Healthcare in India - The Five A's. Indian J Community Med. 2018 Jul-Sep;43(3):141-143. doi: 10.4103/ijcm.IJCM_194_18. PMID: 30294075; PMCID: PMC6166510.
  2. World Health Organization. WHO recommendations on antenatal care for a positive pregnancy experience. Geneva: WHO; 2017.
  3. International International Institute for Population Sciences (IIPS) and ICF National family health survey (NFHS-5), 2019-21: India. IIPS, Mumbai2021
  4. Academic Paper (PDF): Relation Between Children's Well-Being and Family Function in Children with Thalassemia Major in Isfahan in 2013. ResearchGate. [Online] [Last accessed on 2017 Mar 31
  5. Management of Hemoglobin Disorders: Report of Joint WHO-TIF Meeting, Nicosia, Cyprus, 16-18 November 2007. (http://www.who.int/genomics/ WHO-TIF_genetics_final.pdf)
  6. WHO resolution on Sickle Cell Disease (WHA59.20) and Thalassemia (EB118.R1), 29 May 2006. (http://www.who.int/genomics/WHO-TIF_genetics_ final.pdf)
  7. Sengupta M. Thalassemia among the tribal communities of India. Internet J Biol Anthropol. 2007.
  8. Surabhi S. Yadav, Pooja Panchal & Kavitha C. Menon (2022) Prevalence and Management of β-Thalassemia in India, Hemoglobin, 46:1, 27-32, DOI: 10.1080/03630269.2021.2001346
  9. Das M. WHO launches strategy to accelerate the elimination of cervical cancer. Lancet Oncol 2021;22:20–1. 10.1016/S1470-2045(20)30729-4
  10. Institute for Health Metrics and Evaluation. The Challenge Ahead: Progress in Breast and Cervical Cancer. Institute of Health Metrics and Evaluation. 2011. [Last accessed on 2016 Jan 21
  11. Ferlay J, Ervik M, Lam F, Colombet M, Mery L, Pineros M. Lyon: International Agency for Research on Cancer; [ May; 2019 ]. 2019. Global Cancer Observatory: Cancer Today. [Google Scholar] [Ref list]
  12. Cancer care inequity for women in resource-poor countries. Varughese J, Richman S. https://pubmed.ncbi.nlm.nih.gov/21364864/ Rev Obstet Gynecol. 2010;3:122–132. [PMC free article] [PubMed] [Google Scholar] [Ref list]
  13. Park JE. Textbook of preventive and social medicine. Jabalpur: Banarsidas Bhanot; 2019. Textbook of Preventive and Social Medicine, 25th ed; pp. 433–434. [Google Scholar] [Ref list]
  14. Moss S.M., Wale C., Smith R., Evans A., Cuckle H., Duffy S.W. Effect of mammographic screening from age 40 years on breast cancer mortality in the UK Age trial at 17 years' follow-up: a randomised controlled trial. Lancet Oncol. 2015;16:1123–1132. doi: 10.1016/S1470-2045(15)00128-X.
  15. Nelson H.D., Fu R., Cantor A., Pappas M., Daeges M., Humphrey L. Effectiveness of breast cancer screening: systematic review and meta-analysis to update the 2009 US Preventive Services Task Force recommendation. Ann Intern Med. 2016;164(4):244–255. doi: 10.7326/M15-0969.
  16. Hebert JR, Ghumare SS, Gupta PC. Stage at diagnosis and relative differences in breast and prostate cancer incidence in India: Comparison with the United States. Asian Pac J Cancer Prev. 2006;7:547–55. [PubMed] [Google Scholar] [Ref list]
  17. Bashir S, Ansari AH, Sultana A. Knowledge, Attitude, and Practice on Antenatal Care Among Pregnant Women and its Association With Sociodemographic Factors: A Hospital-Based Study. J Patient Exp. 2023 Jun 22;10:23743735231183578. doi: 10.1177/ 23743735231183578. PMID: 37377764; PMCID: PMC10291858.
  18. International Journal of Reproduction, Contraception, Obstetrics and GynecologyJaiswal Set al. Int J Reprod Contracept Obstet Gynecol. 2022Jul;11(7):1877-1885www.ijrcog.org
  19. Khan et al. BMC Global and Public Health (2024) 2:10 https://doi.org/10.1186/s44263-024-00040-x
  20. Raveendran A, Chacko TJ, Prabhu P, Varma R, Lewis LE, Rao P, Shetty PP, Mallimoggala YSP, Hedge A, Nayak DM, Moorkoth S, Moorkoth S. Need and Viability of Newborn Screening Programme in India: Report from a Pilot Study. Int J Neonatal Screen. 2022 Mar 29;8(2):26. doi: 10.3390/ijns8020026. PMID: 35466197; PMCID: PMC9036214.
  21. Biswas B, Naskar NN, Basu K, Dasgupta A, Basu R, Paul B. Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India. J Epidemiol Glob Health. 2020 Jun;10(2):168-177. doi: 10.2991/jegh.k.200102.003. PMID: 32538034; PMCID: PMC7310773.
  22. Kumar M, Purohit A, Pramanik S, Saini S. Evaluation of Factors Affecting Awareness About Beta-Thalassemia in Western Rajasthan. J Family Med Prim Care. 2020 Sep 30;9(9):4801-4804. doi: 10.4103/jfmpc.jfmpc_804_20. PMID: 33209803; PMCID: PMC7652196.
  23. Reichheld, A., Mukherjee, P.K., Rahman, S.M., David, K.V. and Pricilla, R.A., 2020. Prevalence of Cervical Cancer Screening and Awareness among Women in an Urban Community in South India—A Cross Sectional Study.  Annals of Global Health,  86(1), p.30.DOI: https://doi.org/10.5334/ aogh.2735
  24. Ahmed AK, Parveen K, Pooja, Rashi L, Khanum S, Fernandez R, Rinkumathappan. A study on screening of knowledge attitude and practices regarding prostate cancer among men in Bangalore. IP Indian J Libr Sci Inf Technol. 2021;6(1):40-4.
  25. Mittra I, Mishra GA, Dikshit RP, Gupta S, Kulkarni VY, Shaikh HKA, Shastri SS, Hawaldar R, Pramesh CS, Badwe RA. Effect of screening by clinical breast examination on breast cancer incidence and mortality after 20 years: prospective, cluster randomised controlled trial in Mumbai. BMJ. 2021;372:n256.
  26. Toan DTT, Son DT, Hung LX, Minh LN, Mai D, Le, Hoat LN. Knowledge, attitude, and practice regarding breast cancer early detection among women in a mountainous area in Northern Vietnam. Cancer Control. 2019;26(1):1073274819863777. doi: 10.1177/1073274819863777., Ministry of Health and Family Welfare. Operational Framework: Management of Common Cancers. 2016.
  27. Sen S, Khan PK, Wadasadawala T, Mohanty SK. Socio-economic and regional variation in breast and cervical cancer screening among Indian women of reproductive age: a study from National Family Health Survey, 2019-21. BMC Cancer. 2022 Dec 7;22(1):1279. doi: 10.1186/s12885-022-10387-9. PMID: 36476339; PMCID: PMC9727878.
  28. Kunal Oswal et al., Assessment of Knowledge and Screening in Oral, Breast, and Cervical Cancer in the Population of the Northeast Region of India. JCO Glob Oncol 6, 601-609(2020). DOI:10.1200/JGO.19.00257

Public health screening programs are crucial for early disease detection, but limited awareness hinders their effectiveness in India, regardless of literacy. This study assessed awareness levels for key programs among 294 literate and illiterate individuals via an online survey. Results showed high awareness for antenatal care (96%). Newborn screening (NBS) and thalassemia screening awareness were higher in females, particularly regarding thalassemia's hereditary nature (73% vs 61% and 73% vs 57%). Cervical cancer awareness increased with education (83% for graduates). Interestingly, even those with no education displayed some awareness of breast cancer screening. Prostate cancer awareness was similar across genders, with limited knowledge even among highly educated individuals (66% for Ph.Ds). These findings highlight a critical gap in public health education. Genetic counselors can bridge this gap by implementing targeted campaigns, partnering with schools and communities, and collaborating with healthcare professionals. Empowering individuals with knowledge is essential for improved population health outcomes in India.

Keywords : Early Disease Detection, Genetic Counseling, Health Literacy, Population Health Outcomes, Public Health Awareness, Screening Programs in India.

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