Authors :
Tri Budi Santoso; Linda Harumi; Tegar Birona Lintang Rinjani
Volume/Issue :
Volume 11 - 2026, Issue 6 - June
Google Scholar :
https://tinyurl.com/396e5vvu
Scribd :
https://tinyurl.com/57vx9hbc
DOI :
https://doi.org/10.38124/ijisrt/26jun848
Note : A published paper may take 4-5 working days from the publication date to appear in PlumX Metrics, Semantic Scholar, and ResearchGate.
Abstract :
Background:
The leisure time of caregivers of children with special needs (CSN) is often disregarded due to the demanding nature
of intensive care, generating a dichotomy between human rights and structural realities in developing nations.
Objective:
The objective of this study is to explore the activities and meanings of leisure experiences of caregivers of children with
special needs in Indonesia.
Method:
This is a qualitative study with a descriptive phenomenological technique. The subjects were eight primary caregivers
who were purposively picked from YPAC Surakarta. Data were acquired through semi-structured in-depth interviews and
processed using Braun and Clarke’s six-step thematic analysis.
Results:
Three main themes emerged from the results: (1) Reconceptualizing leisure from individual ‘me-time’ to collective
‘quality time’ that is restorative, productive, and strengthens emotional bonds; (2) Leisure activities embedded within
caregiving roles (blurred boundaries), such as domestic creativity and customized outdoor exploration; and (3) Negotiation
of multidimensional barriers (child conditions, dual burden), alleviated by informal support, especially the active role of coparenting.
Conclusion:
The amount of free time experienced by caregivers of children with special needs is a fluid social construct and heavily
dependent on the family support network. These findings contradict the care-recreation paradigm and call for holistic policy
interventions, co-parenting education, and development of culturally appropriate, community-based respite care
alternatives.
Keywords :
Leisure, Caregivers of Children with Special Needs, Phenomenology, Co-Parenting, Respite.
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Background:
The leisure time of caregivers of children with special needs (CSN) is often disregarded due to the demanding nature
of intensive care, generating a dichotomy between human rights and structural realities in developing nations.
Objective:
The objective of this study is to explore the activities and meanings of leisure experiences of caregivers of children with
special needs in Indonesia.
Method:
This is a qualitative study with a descriptive phenomenological technique. The subjects were eight primary caregivers
who were purposively picked from YPAC Surakarta. Data were acquired through semi-structured in-depth interviews and
processed using Braun and Clarke’s six-step thematic analysis.
Results:
Three main themes emerged from the results: (1) Reconceptualizing leisure from individual ‘me-time’ to collective
‘quality time’ that is restorative, productive, and strengthens emotional bonds; (2) Leisure activities embedded within
caregiving roles (blurred boundaries), such as domestic creativity and customized outdoor exploration; and (3) Negotiation
of multidimensional barriers (child conditions, dual burden), alleviated by informal support, especially the active role of coparenting.
Conclusion:
The amount of free time experienced by caregivers of children with special needs is a fluid social construct and heavily
dependent on the family support network. These findings contradict the care-recreation paradigm and call for holistic policy
interventions, co-parenting education, and development of culturally appropriate, community-based respite care
alternatives.
Keywords :
Leisure, Caregivers of Children with Special Needs, Phenomenology, Co-Parenting, Respite.