Authors :
Kalubi Peters; Ochora Moses; Keneema Olive; Nampijja Dorah; Kyasimire Lydia; Kyoyagala Stella
Volume/Issue :
Volume 9 - 2024, Issue 2 - February
Google Scholar :
https://tinyurl.com/4k9r3k5y
Scribd :
https://tinyurl.com/yc4rhpu2
DOI :
https://doi.org/10.38124/ijisrt/IJISRT24FEB1520
Note : A published paper may take 4-5 working days from the publication date to appear in PlumX Metrics, Semantic Scholar, and ResearchGate.
Abstract :
Mothers are regarded as primary care givers
and in many African countries, women are culturally held
responsible for the child’s health. The birth of a child with
birth defect (s) may have significant impact on mothers
psychological, physical and socioeconomic well-being. The
in hospital experience of mothers of children with birth
defects has not been adequately explored and therefore not
fully attended to especially in low resource settings. At
Mbarara Regional Referral Hospital (MRRH), the medical
care team often is more directed towards medical
treatment and surgery of the child born with a birth defect
with little or no focused psychosocial support to their
mothers.
Objectives
The aim of this study was to explore and describe the
experiences of mothers of children with major externally
visible birth defects during their hospitalization at MRRH.
Method
A phenomenological study with purposive sampling
of 12 participants. The adjusted ecological model was used.
Data was collected by self-report using unstructured face
to face interviews until saturation was reached. Five
themes emerged from the study which include: Negative
emotional experience, acceptance of child’s condition,
supportive part of the medical team despite some medical
system challenges (like stock outs of medications and
sundries, fewer staffs in the night) financial challenges and
spiritual, family plus health team support were cope
strategies.
Conclusion
Mothers of children with major external birth defects
were negatively affected especially, emotionally and
financially. These mothers, therefore require psychosocial,
financial and also spiritual support during their hospital
stay at MRRH.
Keywords :
In Hospital, Experiences of Mothers, Major External Birth Defects, MRRH.
Mothers are regarded as primary care givers
and in many African countries, women are culturally held
responsible for the child’s health. The birth of a child with
birth defect (s) may have significant impact on mothers
psychological, physical and socioeconomic well-being. The
in hospital experience of mothers of children with birth
defects has not been adequately explored and therefore not
fully attended to especially in low resource settings. At
Mbarara Regional Referral Hospital (MRRH), the medical
care team often is more directed towards medical
treatment and surgery of the child born with a birth defect
with little or no focused psychosocial support to their
mothers.
Objectives
The aim of this study was to explore and describe the
experiences of mothers of children with major externally
visible birth defects during their hospitalization at MRRH.
Method
A phenomenological study with purposive sampling
of 12 participants. The adjusted ecological model was used.
Data was collected by self-report using unstructured face
to face interviews until saturation was reached. Five
themes emerged from the study which include: Negative
emotional experience, acceptance of child’s condition,
supportive part of the medical team despite some medical
system challenges (like stock outs of medications and
sundries, fewer staffs in the night) financial challenges and
spiritual, family plus health team support were cope
strategies.
Conclusion
Mothers of children with major external birth defects
were negatively affected especially, emotionally and
financially. These mothers, therefore require psychosocial,
financial and also spiritual support during their hospital
stay at MRRH.
Keywords :
In Hospital, Experiences of Mothers, Major External Birth Defects, MRRH.
