Authors : Linda Harumi; Prasaja

Volume/Issue : Volume 10 - 2025, Issue 6 - June

Google Scholar : https://tinyurl.com/3xs62hej

DOI : https://doi.org/10.38124/ijisrt/25jun1420

Note : A published paper may take 4-5 working days from the publication date to appear in PlumX Metrics, Semantic Scholar, and ResearchGate.

Abstract : Background: Cerebral palsy (CP) is a lifelong condition of physical disability, a common complaint is the limitation of movement, posture, and coordination of movement. This condition impacts the child's ability to perform independent activities of daily living (ADLs), such as eating, dressing, toileting, and mobility, which has an impact on welbeing. In environmental situations that are difficult to access therapy and the lack of therapists causes the continuity of therapy to be hampered. The solution to overcome this situation is to optimize the family to stimulate child development. The results of many studies illustrate the effectiveness of family empowerment through structured home-based programs that primarily greatly increase family confidence and capacity to handle children and have a positive impact on the functional ability of children to carry out daily care effectively.  Objectives: The purpose of this study was to measure the effectiveness of a structured home program on the level of family empowerment, gross motor function, and ADL independence in children with cerebral palsy.  Methods: This study used a one-group pretest-posttest pre-experimental design involving 32 children with CP and their caregivers in Sukoharjo District, Central Java, Indonesia. The participants received a two-month structured gross motor stimulation program at home in the form of a gross motor handling guide module for children with CP at home, where, before use, an explanation of the use of the module was carried out so that the implementation of the home program was appropriate, and in its implementation, regular monitoring was carried out through monitoring sheets and WhatsApp groups to ensure that the home program was consistent. The instruments used in this study include the Family Empowerment Scale, Gross Motor Function Measure (GMFM-88), and Wee Functional Independence Measure (WeeFIM). Data were analyzed using the Wilcoxon Signed-Rank test and linear regression.  Conclusion: The results showed significant improvements in family empowerment (p = 0.000), gross motor function (p = 0.042), and ADL independence (p = 0.013) after the intervention. A strong positive relationship was found between gross motor function and ADL independence (R = 0.624; R2 = 0.390; p = 0.000), proving that improved motor ability significantly contributed to improved independence.

Keywords : Family Empowerment; Cerebral Palsy; Gross Motor Function; ADL Independence; Home-Program Intervention.

References :

1. Novak, I., Morgan, C., Fahey, M., Finch-Edmondson, M., Galea, C., Hines, A., et al. (2020). Early, accurate diagnosis and early intervention in cerebral palsy: Advances in diagnosis and treatment. JAMA Pediatrics, 174(9), 897–903. https://doi.org/10.1001/jamapediatrics.2020.1683
2. Rosenbaum, P., & Gorter, J. W. (2021). The 'F-words' in childhood disability: A 2020 vision. Developmental Medicine & Child Neurology, 63(4), 369–374. https://doi.org/10.1111/dmcn.14708
3. Camden, C., Silva, M., Rivard, L., & Vaillancourt, T. (2020). Parent-delivered interventions for children with motor delays: A systematic review. Physical & Occupational Therapy in Pediatrics, 40(1), 1–21. https://doi.org/10.1080/01942638.2019.1642555
4. Araujo, J. P., Moreira, R. S., Magalhães, L. C., & Campos, T. F. (2022). Family-centered practices in pediatric rehabilitation: Evidence and implications for therapists. Child: Care, Health and Development, 48(4), 635–643. https://doi.org/10.1111/cch.12970
5. Morgan, C., Novak, I., & Badawi, N. (2021). Enriched environments and neuroplasticity in children with cerebral palsy: A narrative review. Journal of Child Neurology, 36(4), 270–277. https://doi.org/10.1177/0883073820982347
6. Pierce, J. L., Sheppard, L., & Miller, S. D. (2021). Relationship between family empowerment and gross motor function in infants and toddlers with cerebral palsy. Pediatric Physical Therapy, 33(1), 28–34. https://doi.org/10.1097/PEP.0000000000000747
7. Lee, H. Y., Kim, J. H., & Jung, D. W. (2023). Effects of a parent-implemented motor program on functional mobility in children with cerebral palsy: A randomized controlled trial. Developmental Medicine & Child Neurology, 65(3), 320–327. https://doi.org/10.1111/dmcn.15230
8. Mutlu, A., Gunel, M. K., & Kara, O. K. (2022). Relationship between Gross Motor Function Measure and Functional Independence in children with cerebral palsy. Journal of Pediatric Rehabilitation Medicine, 15(2), 115–122. https://doi.org/10.3233/PRM-220034
9. Effgen, S. K., & Chan, L. (2020). Motor performance and functional outcomes in children with cerebral palsy: Influence of physical therapy. Pediatric Physical Therapy, 32(2), 76–84. https://doi.org/10.1097/PEP.0000000000000662
10. Paneth, N., Hong, T., & Korzeniewski, S. (2020). The descriptive epidemiology of cerebral palsy. Clinics in Perinatology, 47(2), 205–221. https://doi.org/10.1016/j.clp.2020.02.001
11. Ghasemi, A., & Zahediasl, S. (2012). Normality tests for statistical analysis: A guide for non-statisticians. International Journal of Endocrinology and Metabolism, 10(2), 486–489. https://doi.org/10.5812/ijem.3505
12. Ketelaar, M., Vlek, D., & Gorter, J. W. (2021). Variability in response to early interventions for children with CP: Challenges in measuring outcomes. Developmental Medicine & Child Neurology, 63(6), 651–658. https://doi.org/10.1111/dmcn.14730
13. Dunst, C. J., Bruder, M. B., & Espe-Sherwindt, M. (2020). Family capacity-building practices in early childhood intervention. Topics in Early Childhood Special Education, 40(4), 224–236. https://doi.org/10.1177/0271121420916101
14. D’Arrigo, R., Biamonte, F., Di Rosa, G., & Falsaperla, R. (2021). Family empowerment and outcomes in children with neurodevelopmental disabilities: A scoping review. Italian Journal of Pediatrics, 47, 226. https://doi.org/10.1186/s13052-021-01157-3
15. Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J. F. (2021). Family quality of life following participation in occupational therapy home programs. British Journal of Occupational Therapy, 84(3), 171–180. https://doi.org/10.1177/0308022620955236
16. Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214–223. https://doi.org/10.1111/j.1469-8749.1997.tb07414.x